Last modified: June 21, 2019
This Privacy Notice applies to information we collect:
The Site is an innovative digital platform with two main purposes. The main purpose of the Site is to provide music as medicine and entertainment to seriously ill children and young adults, as applicable. Users may register and create an account (“Registered Users”), to access the portions of this Site viewable only by Registered Users.
The second purpose of the Site is as a fundraising platform for CCA to continue to provide music medicine to children and young adults with cancer and other serious illnesses Any user of the Site can see the fundraising and informational materials on the Site.
If you have questions or complaints regarding our Privacy Notice or practices, please contact us at: MyMusicRx@Joyrx.org; or by mail or phone at:
Children’s Cancer Association
1200 NW Naito Parkway, Suite 140
Portland, OR 97209
Kids Privacy Assured by PRIVO: COPPA Safe Harbor Certification
Children’s Cancer Association (CCA) is a member of the PRIVO Kids Privacy Assured COPPA Safe Harbor Certification Program (“the Program”). The Program certification applies to the digital properties listed on the validation page that is viewable by clicking on the PRIVO Seal. PRIVO is an independent, third-party organization committed to safeguarding children’s personal information collected online. The PRIVO COPPA certification Seal posted on this page indicates Children’s Cancer Association (CCA) has established COPPA compliant privacy practices and has agreed to submit to PRIVO’s oversight and consumer dispute resolution process. If you have questions or concerns about our privacy practices, please contact us at 503.244.3141 or email@example.com. If you have further concerns after you have contacted us, you can contact PRIVO directly at firstname.lastname@example.org.
CHILDREN UNDER THE AGE OF 13
We do not knowingly collect General User Personal Information (as defined below) from children under 13. If you are under 13, do not use or provide any information on the General Content of the Site. If We discover that personal information was collected through the General Content of the Site from a child under 13 without verification of parental consent, We will delete that information. If you believe We might have any information from or about a child under 13, please contact Us pursuant to the Contact Information provided above.
Registered Users or Potential Registered Users
Potential Registered Users are prompted to fill out a profile in order to become a Registered User of the www.MyMusicRx.org website. We require verifiable consent from a parent or guardian before a profile goes “live” on the www.MyMusicRx.org website for any child under the age of 13. Whenever a child under 13 years of age attempts to register an account to become a Registered User, CCA will automatically send an email to the child’s parent/guardian so that the child’s parent/guardian can indicate his/her consent (or lack of consent) to the child’s registration and membership on the Site as a Registered User. If your child completed a Registered User account application, but We have not received your parental consent, We will delete the Registered User Personal Information received as well as any parental contact information submitted to the Site. A child’s participation or access to an activity is not conditioned on him/her providing more Registered User Personal Information (as defined below) than is reasonably necessary for that activity or the services provided by CCA.
INFORMATION WE COLLECT ABOUT YOU AND HOW WE COLLECT IT
Information We Collect About General Users and Offline
We collect several types of information from General Users of the Site, as well as offline, including information:
We collect this information:
If you are under the age of 13, do not provide General User Personal Information to CCA.
Information We Collect About Registered Users or Potential Registered Users on the MyMusicRx.org Website
To become a registered user
For Under 13
For Users 13 and Over
The information listed above shall be referred to herein as “Registered User Personal Information.”
In addition to the Registered User Personal Information, a Registered User may indicate his or her favorite songs or instruments they play, create playlists, and indicate the types of music, lessons, and games that they like. Once a MyMusicRx account is created, it may be updated from time to time with status updates, new musical choices, photos, and other changes.
We collect this information directly from you, only if you choose to provide it.
INFORMATION WE COLLECT ABOUT GUEST USERS ON THE MYMUSICRX.ORG WEBSITE
We collect several types of information from Guest Users of the Site, including information:
We collect this information:
If you are under the age of 13, do not provide Personal Information to CCA.
REGISTRATION TO RECEIVE Registered User CONTENT ON MYMUSICRX.ORG WEBSITE
The following registration process applies to receive the Restricted Content, depending on the age of the potential Registered User.
Users Under 13
Potential Registered Users are prompted to fill out a profile in order to become a Registered User of the site. Whenever a child under 13 years of age attempts to register an account to become a Registered User, CCA will automatically send an email to the child’s parent/guardian so that the child’s parent/guardian can indicate his/her consent (or lack of consent) to the child’s registration and membership on the Site as a Registered User. Guardians/parents may at any time review any Registered User Personal Information collected about their child in accordance with the Registered Users and Registered Users Parent or Guardian requirements below.
If you are under the age of 13, you’ll need your parent or guardian to consent to your registration on the www.MyMusicRx.org website. In attempting to register as a Registered User of the site an automatic email is then generated requesting consent from the parent/guardian for the child’s registration and use of the site.
Users 13 and Over
As is true of most websites, we gather certain technical information automatically and store it in log files. This information may include Internet protocol (IP) addresses, browser type, internet service provider (ISP), referring/exist pages, operating system, date/time stamp, and/or clickstream data (i.e., your navigation path on the Site).We do not link this automatically collected data to other personally identifiable information we collect about you.
We and our analytics provider, Google Analytics, use technologies such as cookies, pixels, tags, and scripts, to analyze trends, administer the Site, track users movements around the Site, and to gather demographic information about our user base as a whole. We may receive reports based on the use of these technologies by these companies on an individual and aggregated basis.
HOW WE USE YOUR INFORMATION
For all General Users (which includes Registered Users, Guest Users and offline), We use information that We collect about you or that you provide to Us, including any personal information:
DISCLOSURE OF YOUR INFORMATION
Disclosure of Personal Information.
We may also disclose your personal information:
LINKS TO OTHER WEBSITES
The Site contains links to other websites, including, but not limited to, the following. We are not responsible for the privacy practices of 3rd party sites. We encourage you to be aware when you leave the Site and to read the privacy statements of each and every website that collects personally identifiable information.
|Google Analytics||Website Traffic Info||Analytics||https://policies.google.com/technologies/partner-sites|
If you have any inquiries regarding our partner’s privacy practices or how they use your child’s personal information, please contact Us directly at MyMusicRx@Joyrx.org.
DO NOT TRACK SIGNALS
Some web browsers have settings that include “do not track signals.” The Site is not currently engineered to respond to “Do Not Track” signals from those browsers.
CHOICES ABOUT HOW WE USE AND DISCLOSE YOUR INFORMATION
We strive to provide you with choices regarding the personal information you provide to Us. We have created mechanisms to provide you with the following control over your information:
ACCESSING AND CORRECTING YOUR INFORMATION
Registered Users and a Registered User’s Parent or Guardian – www.MyMusicRx.org
A Registered User can review and change his/her personal information by logging into www.MyMusicRx.org and visiting his/her MyMusicRx account profile page. You may also send Us an e-mail at: MyMusicRx@Joyrx.org to request access to, correct or delete any personal information that you or your child has provided to Us. You may also message Us by logging into your account and using the contact us functionality. We cannot delete your personal information except by also deleting the affiliated user account. We may not accommodate a request to change information if we believe the change would violate any law or legal requirement or cause the information to be incorrect. We will respond to your request within a reasonable timeframe.
When setting up the account of a child under 13, the child’s parent/guardian is notified that they can review any Registered User Personal Information collected from their child, have this information deleted, and/or request that there be no further collection or use of their child’s information by email. For young adults aged 13 through 17, guardians/parents can contact CCA at MyMusicRx@Joyrx.org, to receive access to view, edit and close a MyMusicRx account.
We will retain Registered User Personal Information for as long as the Registered User’s account is active. We will retain and use your information as necessary to comply with Our legal obligations, resolve disputes, and enforce our agreements.
DIGITAL DATA SECURITY
The security of Registered User Personal Information and General Personal Information is important to us. We have implemented measures designed to secure your personal information from accidental loss and from unauthorized access, use, alteration and disclosure. When you enter Registered User Personal Information on our registration or other forms, we encrypt that information using secure socket layer technology (SSL).
The safety and security of your information also depends on you. Where We have given you (or where you have chosen) a password for access to certain parts of the Site, you are responsible for keeping this password confidential. We ask you not to share your password with anyone. The information you share in public areas may be viewed by any user of the Site.
Unfortunately, the transmission of information via the internet is not completely secure. Although We do our best to protect your personal information, We cannot guarantee the security of your personal information transmitted to the Site. Any transmission of personal information is at your own risk. We are not responsible for circumvention of any privacy settings or security measures contained on the Site.
CHANGES IN THIS PRIVACY STATEMENT